Rett Spectrum Clinic

Focused on supporting children with rare neurodevelopmental disorders, our clinic is a collaborative effort between WashU Medicine and St. Louis Children’s Hospital, offering expert care for Rett Syndrome, MECP2 duplications, CDKL5 and FOXG1-related conditions. Within each visit, families meet with a multidisciplinary team — including specialists in neurology, therapy and nutrition — to receive comprehensive evaluations and personalized recommendations. A dedicated nurse navigator ensures seamless coordination and ongoing communication with referring providers and families.